Until the next appointment, I did my homework researched TONS and typed an entire list of problems he was having, recorded the problems and made discs for him to see.
No matter how much research you do and no matter how prepared you come, nothing can prepare you for what the doctor has to say.
He was %100 sure our son had tourettes. He has the characteristic ADHD, OCD, anger/emotional problems, motor and vocal tics. The only difference is that we had only paid attention to these signs for the last 7 months. So for now untill our June appt. He has been on paper diagnosed with transient tics.
The doctor whom I would strongly recommend, said that he did not want to medicate him unless he was causing harm to himself or others. But has recommended behavior therapy.
So in February(on his birthday) We took him the the first behavoir therapy only to leave very frustrated. This first appt. they did nothing but talk to us about everything I had already filled out papers on(A WASTE OF TIME). And they recommended to have developmental test done, because they think he may also have Aspergers.
After doing a lot of research this week, I have found that our insurance will not pay for any of this untill we hit our $3,000 deductible! The test alone we were told could cost anywhere from $300-$1,000. And the therapy would be $250 a week for 6-8 weeks!
WHO CAN AFFORD THAT!
So Now I am doing reasearch on Cognitive Behavior Therapy to see if any of it can benifit our sons with Tourettes and for all other families that don't want to medicate their child or can not afford the therapy.
There will be no book untouched when I'm Through and I hope it will help our child and hopefully someone else's!
Wednesday, March 3, 2010
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You & Taylor are certainly in our thoughts, Tracee, and I know, first hand, how frustrating things can be.
ReplyDeleteThe Explosive Child by Ross Greene is a FANTASTIC book! Highly recommend it.
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