Now today he is 8yrs old and in the second grade.(in his grandmas class!).
We first noticed that something more was going on when his grandpa(who lives on the farm) came to us with some concerns. He noticed that Taylor(our son) was occasionally jerking is neck. When you would ask him to stop it would get worse. I thought it was just because he hated the way tags felt. We kept telling his grandpa he was fine and to ignore it.
One night shortly after that our family was watching a movie. I looked over and noticed that he was non stop blinking one after another. It went on the entire movie. From that day we noticed more and more involuntary movements. Leg spasms, some vocal noises, a motion where his body will move in the shape of an S and more. Now we were really concerned.
I called the family doctor that day make an appointment to have him checked. The appointment was for two weeks later. In between that time the movements got worse. So with not much thinking we decided to take him to the children's emergencyroom to hurry the referral to a neurologist. Of course like we knew they could not do much there. But check his reflexes and they did a cat scan to make sure there was nothing in the brain causing these movements.
Thank goodness found nothing unusual. But they also scheduled 2 more tests for later that month, an EEG and an MRI.
CAME BACK NORMAL! In a way a relief but no explanation on why this was happening. So now we are back feeling hopeless and lost as to how to help our son. They did refer us to the neurology there at the hospital, but another wait for 3 months!
Below is a video of the tics the day before we took him to the emergency room, They were like this all evening. You will notice his neck tic and one that involves the whole body moving to the side and the leg tics.(which you can see he gets frustrated with and tries to hold them down)